Antonio Bañón, un impulso decidido a la mirada social de las enfermedades raras

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El diagnóstico de un hijo con una enfermedad rara lo volcó de lleno en su estudio.  Antonio Bañón, profesor de Filología española en la Universidad de Almería, es el impulsor del Observatorio de Enfermedades Raras. Se creó en 2009, pero no fue hasta 2012, con el respaldo de la Federación Española de Enfermedades Raras, cuando se consolidó. Desde entonces, el Observatorio recopila información sobre estas enfermedades desde el punto de vista social, educativo, cultural y de los medios de comunicación. Desde su creación han detectado un mejor tratamiento de estas enfermedades en los medios de comunicación y pide la implicación de la sociedad para hacer mejor la vida de los 8 millones de personas que en España padecen alguna enfermedad poco frecuente.

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  219. It should come to no surprise that GGNetwork with BetKings and GGPoker are the number one choice for Canadian poker players. Your friendly southern neighbors are cursing how lucky you are to have access to a site like GG with great welcoming bonuses and huge monthly promotions, distributing millions of dollars to their players in all variants of poker. We researched sites and compiled a list of the best places for you, whether you live in Canada or anywhere else in the world. The only limitation you may have is if your jurisdiction abolishes gambling activities. Some of the highest-ranking sites include: Poker Hand Rankings List – Download and print this free overview of top poker hands. Get to know the strength of your poker hand and win the next game.
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  249. Crypto offers a fairly standard range of products. Like you’d expect from a cryptocurrency exchange, Crypto’s main focus is letting you trade different cryptocurrencies. Currently, it has over 250 coins for sale, with the five biggest sellers being: Yet this week, Crypto, which billed itself as “the world’s fastest-growing cryptocurrency platform,” said it had secured the naming rights for 20 years to Staples Center in Los Angeles. The venue will be renamed Crypto Arena on Dec. 25. The deal cost about $700 million, said two people with knowledge of the details, one of the largest sums ever paid for a sporting venue’s naming rights. Prosecutor Bruce Nibbs told the court another person opened an account on crypto and that $100 was deposited into it from her Manivel’s bank account. Detecting the inconsistency between the name of the account and origin of the funds, crypto said it would refund the money to Manivel.
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  260. We’ll talk about this in detail later but the essential fact you need to understand is that you can’t download (legal) mining apps from your smartphone’s app store. You need to either download them from the internet, which is extremely risky or ask someone you know to share a crypto mining app with you. Cryptocurrency mining serves a crucial role in the blockchain ecosystem, in addition to being individually profitable. Cryptocurrency mining is, in simplified terms, the process of verifying transactions made on the blockchain. The miner is eligible to receive coins as a reward once a given block or portion of the blockchain has been verified. These processes most heavily depend on graphical processing units (GPUs) or application-specific integrated circuits (ASICs) to handle the necessary computations.
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