Loading...Tras quince años de trabajo, investigadores del Hospital Regional de Málaga y del Instituto de Investigación Biomédica de Málaga (IBIMA) han desarrollado un fármaco para tratar el síndrome X Frágil. La Agencia Europea del Medicamento ha otorgado el estatus de medicamento huérfano a este producto, con un 65% de eficacia en el ensayo clínico realizado.
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Recursos
Enhorabuena al Canal Historias de Luz por servir tan magníficamente a la difusión de todo lo bueno que se hace en Andalucía. Formáis un gran equipo.
Felicidades a todos los profesionales que han formado parte del equipo de investigación CTS546 y enhorabuena a todas las familias que directa o indirectamente han estado implicadas en los ensayos clínicos desarrollados, para tratar de establecer la eficacia del tratamiento con la combinación de vitaminas antioxidantes. Sois lo pioneros que con vuestro esfuerzo permitís avanzar el conocimiento científico y el progreso de la humanidad, por ello todos nosotros estamos en deuda con vosotros.
Gracias familias por vuestro apoyo continuado al equipo de investigación durante los últimos 20 años. Sois el motor que mueve este proyecto y nos motiváis siempre a seguir y todos admiramos vuestro esfuerzo y dedicación al cuidado siempre amoroso de miles de preciosas mariposas afectadas por el Síndrome X frágil. ¡¡¡Arriba X-frágil Málaga y X-frágil Andalucía!!!.
Ole ole y ole como se dice en Andalucia. Un saludo desde Málaga.
Soy abuela de un niño de con X Fragil, gracias por vuestra dedicacion,esfuerzo y constancia. Enhorabuena
Mi niño tiene 33 meses y le acaban de diagnosticar x- fragil. Con este medicamento se abre una esperanza para todas las familias afectadas. Muchísimas gracias por todo el trabajo realizado y no existen palabras para agradeceros.
Muchísimas gracias José.
si quieres tener mas información puedes seguirnos en la WEB personasxpeciales.es y por facebook en personasxpeciales. o contactarnos por email: ydediego@yahoo.es
Un saludo
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